Father in a world of pain
A FATHER-OF-THREE from Goole has been denied treatment for a condition that leaves him in permanent pain after doctors failed to diagnose the condition for eight years.
Mark Rance, 27, from Jackson Street, suffers with Benign Joint Hypermobility Syndrome – a genetic and degenerative condition that affects the body's soft tissues, for which there is no cure.
He now faces the rest of his life unable to work or carry out daily tasks, and has to wear calipers on his legs and use a mobility scooter to get around.
Mr Rance claims doctors at several hospitals failed to spot the signs of the illness for eight years, diagnosing several other incorrect illnesses, preventing him from getting the life-changing physiotherapy sessions he needed for his condition.
It was not until Mr Rance saw a specialist doctor who was visiting Goole hospital earlier this year that he was given a accurate diagnosis, allowing him to research the condition.
But the damage to Mr Rance's body had already been done and he was unable to undergo physiotherapy which, if started early enough, can delay the effects of the condition.
Mr Rance, who has been forced to give up his electrical engineering business, is now calling for more awareness of the illness to prevent other sufferers being left in his situation.
It comes after the Mail told Alex Nolan's story, who also suffers with the same condition.
The 13-year-old, of Bridlington, has been diagnosed young enough to be able to have daily physiotherapy, something Mr Rance hopes he will take advantage of.
Mr Rance said: “One of the reasons my condition is so bad is that it was late in life when I was diagnosed, at which point the damage had been done.
“This is mostly due to the condition being not very well known and often misdiagnosed as simple hypermobility.
“If somebody had told me what I now know when I was young I would almost certainly be less affected now.
“Although there is no cure, you can limit the damage and delay the situation I have found myself in at the age of 27.”










4 Comments
by Dawn Barlow, Leicester
Thursday, September 04 2008, 11:25AM
“I understand how hard it is to get a correct diagnosis, as i had trouble getting my son who was 10 at the time diagnosed. We were told he had growing pains and were seen by a lot of doctors. Since then myself and daughter have also been told we have Ehlers Danlos. We definitely need more people being made aware of this.
Dawn Barlow
Leicester”
by Danielle, Hull
Monday, July 21 2008, 9:03PM
“I also suffer from joint hypermobility syndrome. I got diagnosed last year (aged 22) after almost 13 years of suffering and several operations on both my knees.
Currently im just waiting for another operation to try and prevent my knee caps coming out of joint. Which is a major operation. It does affect my every day life but I get on with it as best I can. Best thing is to just press on.”
by Sharon, HULL
Monday, July 21 2008, 12:46PM
“I still think that Mark should push for some help and support with physio/hydrotherapy to enable him to maintain the movements he still has.
The report does not say if either attend a pain management centre?”
by John Tarbet, Hornsea
Monday, July 21 2008, 12:06PM
“Poor guy I feel for him, but if he and the Mail really wanted people to know more about this condition then way isn't there more about it above? All it says it it attacks the soft tissue. How does it attack the soft tissue? More information about this condition should be printed above.”